Autism: Things Indian Parents/Students need to know…

I want to raise awareness about Autism Spectrum Disorder (ASD) among Indian students and, especially, adults. Many Indian schools and parents lack knowledge about learning disabilities, leading to numerous children with ASD remaining undiagnosed. This lack of diagnosis often means their challenges persist into adulthood.

Children with ASD often struggle academically, resulting in poor grades and subpar school performance. This can lead to limited career opportunities and poor life choices, contributing to a life of hardship. Beyond career and financial struggles, individuals with ASD frequently experience difficulties with social interactions, leading to strained personal and professional relationships. This isolation can result in loneliness and depression. So this blog is all about that…

I am not an expert, this blog is intended only to raise awareness about Autism, I hope it helps. For any information please seek an actual psychologist/therapist/neuroscientist.

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When you search for autism online, you might find two extremes on the “spectrum”. On one end, there are people with lower motor or cognitive skills, often associated with certain stereotypes. On the other end, you’ll see famous names like Einstein, Elon Musk, Billie Eilish, Beethoven, Tesla, Leonardo Da Vinci, and Steve Jobs. This mix of names is inspiring and can make your heart melt…

ASD is a broad spectrum that includes conditions like ADHD, anxiety, depression, focus issues, and learning disabilities. It was once called Asperger’s Syndrome, but now it’s better known as part of the Autism Spectrum Disorder (ASD).

Key Characteristics of ASD

Common Traits:

1. Poor social interaction
2. Difficulty understanding the world, emotionally.
3. Hyperfocus leading to loneliness, depression, and anxiety (this may or may not be traits related to ASD, but a side effect)
4. Sensitivity to sensory stimuli: Overreaction to loud noises, bright lights, strong smells, or certain textures (or even towards certain types of clothing/food)
5. Repetitive behaviours: Engaging in repetitive movements, routines, or ritual. Going to the same coffee shop, ordering similar dish. Wearing similar type of clothing.
6. Speech and language difficulties: Delayed speech development, trouble with conversational skills, or unusual speech patterns. Stutter, low self esteem etc.
7. Trouble with changes: Difficulty adapting to new situations or changes in routine. Not being able to adapt to new circumstances quickly. Feeling left out in newer places (for a substantial amount of time).

Possible Traits:

1. Hyper focused career: People with ASD often have extreme passion for specific topics, leading to career success.
2. Inherent creativity: Their unique way of thinking and visualizing often results in high creativity.
3. Deep relationships: Despite lacking social skills, they may form deep, empathetic, and altruistic relationships. (Although very few)
4. Attention to detail: Remarkable ability to notice and remember small details and patterns.
5. Logical thinking: Strong skills in logic and analysis, often excelling in subjects like math and science. They are good at compartmentalising thoughts.
6. Strong memory: Exceptional long-term memory, especially for facts, dates, and details (for example remembering 100 year calendar)
7. Visual and spatial skills: Superior ability to understand and manipulate objects in space, which can be advantageous in fields like art, engineering, and architecture.
8. Unique problem-solving skills: Innovative approaches to solving problems that others might not see.
9. Intense focus on interests: Deep and specific interests that they pursue with great passion and expertise.
10. Empathy and compassion: While they might struggle with social interactions, they can show deep empathy and compassion in their own way. They also show extreme loyalty.

Misconceptions and Challenges

You might think having ASD is better than being neurotypical based on some points, but that’s not the case.

In some parts of the world, like the West, many schools understand and support neurodivergent students. These schools have programs and resources to help students with ASD, ADHD, dyslexia, and other conditions thrive academically and socially. Teachers and staff are often trained to recognize the signs of these conditions and provide appropriate support.

However, in places like India, the situation is quite different. Except for the ultra-rich, understanding conditions like dyslexia or ASD is rare. Many schools lack the resources and trained staff to identify and support neurodivergent students. As a result, many children go undiagnosed and do not receive the help they need. They might struggle in school, face bullying, and develop low self-esteem.

Moreover, the education system in many countries often does not focus on fields like neuroscience and psychology. These subjects are essential for understanding and supporting neurodivergent individuals, but they are often overlooked. People tend to choose these fields only if they have lower grades or dislike mathematics (I am not saying all, but many), which leads to a shortage of qualified professionals. There aren’t enough therapists, psychologists, or special education teachers who can provide the necessary support for individuals with these conditions.

This lack of understanding and support can have serious consequences. Undiagnosed and unsupported neurodivergent individuals may struggle with mental health issues, have difficulty finding and keeping jobs, and face social isolation. It’s important to raise awareness and improve the education and support systems to ensure that everyone, regardless of their neurodivergence, can lead a fulfilling life.

The Silent Struggle

Many individuals with ASD struggle silently in their studies, personal lives, relationships, and jobs. They are often mislabeled as lazy or dumb, which deeply hurts their self-esteem. Although less than 2% of the population has this condition, 2% of a large population is still a significant number of people who are affected.

The outlook for autism in many places is not good. In school, students with ASD might struggle to keep up with their peers due to a lack of understanding and support from teachers and classmates. This can lead to poor academic performance and a lack of confidence. In personal lives and relationships, individuals with ASD might find it hard to communicate and connect with others, leading to feelings of loneliness and isolation.

In the workplace, the situation can be equally challenging. Admitting to an interviewer that you have autism can significantly increase the chances of rejection, even if you’ve cleared multiple interview rounds. This has happened to someone close to me. Employers often have misconceptions about autism and might wrongly assume that individuals with ASD cannot perform well in a job. This stigma makes it difficult for them to find and keep employment, further impacting their self-esteem and financial independence.

Overall, the lack of understanding and support for individuals with ASD in various aspects of life can lead to a cycle of struggle and frustration. It’s crucial to raise awareness about autism, challenge misconceptions, and create supportive environments in schools, workplaces, and communities. This way, individuals with ASD can have the opportunity to succeed and thrive just like anyone else.

A Call for Change

I don’t see big changes happening soon, especially with the current political climate in many parts of the world. However, if you are struggling, it’s important to get tested. Mental health and neuroscience are not always a priority, so taking action yourself is crucial.

In many places, mental health and neuroscience don’t get enough attention, meaning there might not be enough resources or help available. This makes it hard for people who are struggling to get the support they need. Despite these challenges, it’s important not to ignore your struggles. If you think you might have a condition like ASD, getting tested is a vital step.

Being proactive about your mental health means seeking out professionals who can provide a diagnosis and recommend the right treatment or support. This might involve finding a specialist, advocating for yourself at school or work, and connecting with support groups or communities that understand your experiences.

Even though big changes may be slow, you can still take steps to improve your situation. By getting tested and seeking help, you can better understand your needs and find ways to cope and thrive. Remember, your mental health is important, and taking action is a sign of strength and self-care.

Recognising the Traits

If you are an adult and notice that you have some or many of these traits, it is important to seek medical help. In India, there can be significant stigma and misunderstandings about autism, which may prevent people from seeking the help they need. Speaking openly about your experiences can raise awareness and encourage others to seek help too. By sharing your story, you have the power to challenge these misconceptions, change lives, and make a positive impact. Remember, seeking help is a sign of strength, and your journey can inspire others to take action and improve their own well-being.

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Thanks for reading 🙂